Hello;
Has anyone heard of anything similar: I have pain in my skin, that travels around my body in large patches. It feels like a bad sunburn or a bad bruise, but there are no changes to the skin's colour, temperature or thickness. It's usually in the areas from the waist down. It is painful without touching it, but if these patches are touched, it's aggrevated more. The patches can come and go without warning, and can move around. Additionally, I have several extremely painful points also, such as my lower back & hips, thighs, ankles & heels. I can tolerate broad pressure (like a flat hand), but if I'm pressed with a fingertip, it's excrutiating. Quite often I have difficulty walking because the pain on the backs of my heels is too severe (not under my heel, but on the back and sides, between ankle bones). I've been told I may have fibromyalgia, or reflex sympathetic dystrophy, but neither of these match my symptoms quite right... Have you heard of this before?? Any suggestions for websites? Thank you!

I'm sorry I can't help you..but, I wanted to tell you I will keep you in my thoughts and pray you find the answers you are looking for.

also, from what I understand about RSD, the symptoms can vary so much from person to person.

What medications are you on? Could this be the cause or a contributor to the pain patches?

Keep the faith--

Shawnee

Leslie,

Hello, My name is Dawn and I have RSD in both lower legs (since May 2000) and it is spreading to both hands. Although my pain has never been as you described that does not rule RSD out for you. Has your doctor said anything about nerve blocks? Might be something to think about. I will keep you in my thoughts. Keep us updated about your condition and what dx you end up with from your doc.

Dawn

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My prayers are with you. The more people we educate about RSD the more chances that just one of them may find a way to help us all.

Thanks so much!
I have been to the doctor, and have been prescribed Trazodone before bed so that I get a better sleep (apparently poor sleep can aggravate this condition?) and also Vioxx for the pain (it's a mega-Advil-type rx). Anyone heard of success with this combo? I've heard some negatives about Vioxx, but nothing about Trazodone. I hate taking meds, however I do have to say, Im feeling better. We'll see how long-term it'll be....
Stay Well...
-Leslie